Merry Christmas everyone! Well, maybe not for everyone, but for us it was a very merry Christmas.
Since my last post there hasn't been too much happening. Alex was SO good the day we did the ECKO and all... but boy did she take a turn the same night. It's so frustrating that it's so unpredictable. Alex had a really rough couple of days following. We ended up getting her on some steroids that are seeming to help. I just hope they don't make it hard for her to get around for the 3 days after they end. We'll see. One bad thing just leads to another. It's just a matter of deciding what bad thing you can deal with at the time.
It's been a strange few days; filled with a lot of emotion. I thought it was bad watching Alex endure all this sickness... but it's SOOOO much harder seeing her so scared. In the last few days she has been on the verge of tears constantly. That is hard to watch. I wish there was a way for me to make this less frightening for her.
Alex has been enjoying time with her dad and her stepmom. This visit has definitely been different. You can tell that it's all catching up with her. She has so much on her mind and is finding distractions much more difficult. I hope we can try to take her mind off of things over the next few days while she is home and doing fairly well.
I will update more on Tuesday with the radiation consult information.
Alex and I
Alex unwrapping her super cool tapestry that I got her at the Cluny in Paris.
Alex's grandfather, Carl... in his new Snuggie!
The Thomas's
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